Key insights for healthcare professionals (HCPs) to improve clinical conversations with caregivers and enhance their engagement in treatment decisions.
A qualitative study analysing caregiver interviews indicates that if you meet a Dravet syndrome caregiver who is resistant to treatment change, these are the potential reasons:1
Wider priorities beyond seizure control and a feeling these are not being acknowledged.
Anxiety that they are not achieving the balance that is right for their child and for their family in the current treatment pathway.
Anxiety from past negative experiences early in the treatment journey associated with the diagnosis experience.